If you asked me about my favourite comic, I'd probably single out
Dorohedoro. I've done so before, when the subject has been put to a community vote, and that position and appreciation hasn't really changed since. Delineations in the absolute are however largely pointless, and so if met with the same inquiry another day, I might just as well offer up another work very special and important to me: we're talking about
With the Light: Raising an Autistic Child by Keiko Tobe.
Presenting the two works as a set does more than illustrate my personal tastes, as I've come to view them as an useful contrast in what it takes to get noticed in the field and cultivate awareness about one's work. Both series began serialization around the same time, and became their authors's longest works; neither Tobe nor Q Hayashida are household names but if they're known for anything it's for the synonymous association with these representative series of theirs. Both are works by women, but
Dorohedoro always benefited from its chosen genre as a horror comedy action series filled to bursting with gleeful violence and gore; it was the sort of stuff that would get passed around and picked up by scanlation enthusiasts and not necessarily be read as feminine in the pejorative. The recent anime adaptation has only made its profile rise ever upward now that Hayashida's work on the series has concluded and she's moved on to new projects. The contrast that exists here is that as a nerd on the Internet, I would have been primed to stumble onto
Dorohedoro even if not seeking it out for the demographics it appeals to and the qualities that have made it so eye-catching for its over twenty years of existence, whether the scale of that interest is considered niche or underground--and I did, leading me to follow the official localized serialization to its end.
For
With the Light, a comic that occupies a genre and stylistic and aesthetic space so distant from its peer and yet which I value in equal measure, that never would have happened. I have not seen a single person talk about it in the years I've orbited and passed through enthusiast circles and communities; it's not ever mentioned even in passing. The intimation isn't to declare that it was a totally unknown series with no audience or that it was never acknowledged casually or professionally--its serialization spans a decade, after all--but that the distinction in what kind of discourse it could even exist in differs. It's not the kind of series that explodes into pop culture notoriety because it's about a topic many don't want to broach even fictionally, and it's not loud and impactful in an outwardly projected way--all the emotional significance is internal and slowly simmered. And yet the only reason I know about it is because someone believed in it, at Yen Press in 2007, and localized and published it to its respective conclusion. I don't know if fan scanlations of it exist, because I never came across or had reason to seek them out, and because word of mouth for the series has been totally nonexistent in my personal context, it really was just all chance that I picked up the volumes of my own volition and curiosity when I did. It's a small miracle that it ever worked out in a way that landed the volumes on my shelf where they stand now.
The deeply personal connection that can be cultivated when engaging with "unknown" works is something that understandably many of us are suspect of, but I have that streak in me in the media I tend to connect with, and I'm not inclined to stamp it out just to preserve an artifice of ostensible critical rationality. I did always delight in
With the Light on the level of pure craft in the kind of work that it represents--a soapy, melodramatic and intensely empathetic drama with Big Issues social relevance--but it's ceased only being about reveling in the niche for its own sake. A recent readthrough of the series is the first time I've done so after my own diagnosis of being on the autistic spectrum, and that context applied to a work I already loved is transformative in ways that I struggle to capture in words; I'll just have to summarize that it affects me differently now because of the lived experience that I can retrospectively apply to it and on my own life. That I feel the work to be elevated by this new context instead of somehow ringing hollow for it is statement enough to at least one individual's assessment of Tobe knowing exactly what she was doing with her work.
Research and an informed perspective are what fuel
With the Light and what it is. Tobe herself wasn't autistic, and neither was anyone in her immediate family; reportedly her son's autistic classmate is what inspired her to explore the subject and in essence dedicate large part of her life to it, as any long-term scheduled creative work demands. You get the sense reading her work that she means her comic to be an educational piece, both for herself and her readers, as it's a gradual process constantly layered on with new nuances of representing autism authentically and with kindness. In search of that balance much of her work is directly based on real-life experiences and perspectives by autistic folks and their families, whom Tobe contacted, interviewed and worked with to integrate into her own fictionalized account of Hikaru Azuma and his family. The individual traits of Hikaru's autism, the insistences characteristic of him, and the challenges of navigating a society uncaring or unaccommodating of them are often sourced from these models who've already lived them without the safety net of a fictionalized representation of how the world operates. The work itself makes it clear that none of it is callously or ignorantly handled, and each volume includes written essays by those very same people Tobe's story is patterned after, lending them a platform and a voice to tell their own stories and how they're reflected through the fictionalized treatment.
"Educational" media carries with it an undeniable stigma, as it evokes associations of forcibly and clumsily communicated cornball misfires that in effect repel people away from the subject they're meant to elucidate about, and this is an unmistakable aspect of
With the Light that might chafe, depending on one's willingness to roll with its narrative rhythms. There's an afterschool special sensibility to some of its episodes, as it casts a wide net on many social issues that are not strictly dedicated to autism and Hikaru's everyday life, but encompass the cast around him no matter their level of relevance to his personal context. The strength of the approach is that Tobe's craft as a visual and serial storyteller enables her to integrate whatever topic she wishes to explore into the makeup of the comic without compromising anything about its value as entertainment on a page. It's not a how-to for rearing autistic children or interacting with autistic people as the comic stresses with relatably emphasized patience that each manifestation of autism in the individual differs and cannot be treated as an universal; all it does is concoct as many authentic situations and scenarios, big or small, through its thousands of pages to both provide a relatable context to its material and to ensure that the story has innate merit outside of its more lofty purposes. It's not study hour and not meant as such, but because of how naturalistically just learning about autism works as the crux of the narrative--Hikaru is the center of his family's life while others in different circumstances and exhibiting different characteristics are regularly featured--the end result is still the same in that engagement with the storytelling is equal to engaging autism honestly, demystifying it in the process no matter one's prior level of awareness.
As a true-to-life slow-burn drama anchored by the birth and gradual development of its featured character,
With the Light is not one to work according to fictionalized standards and trends that other genres might be defined by. It's a work created for an adult audience, with the priorities and concerns an adult might have should they find a mirror for themselves in the material. Hikaru is the central subject of the piece, but the series is told primarily from the perspective of his mother Sachiko--hers is the written voice that defines the narrative, in all the ordeals she's subjected to in creating the best possible life for her son and family, often sacrificing her own health and personal desires for it. Sachiko is intensely driven in all she does but she's not portrayed as infallible or untouchable nor romanticized for enduring her hardships: she represses her own insecurities and doubts as she weathers criticism and microaggressions from all directions, directs them to jealousy and at a low point in her life, is shown to have physically abused Hikaru in a panicked effort to calm him down and to relieve herself of the burden she felt his existence placed on her. The series takes these actions seriously and condemns them in no vague measure, but it has the understanding and willingness to admit that abuses like them occur even in "happy" homes and by those not singled out to be offenders. Sachiko's mistakes as well as everyone else's are always grounded in empathetic cause and effect, as the series depicts people at their worst and does not place the blame on strictly the individual but the failures of the institution to protect their charges or on the lack of social support systems for those that need them. It deals in the governance of the educational system to a primary focus, spotlighting the added complexities and bureaucratic bigotries directed at disabled people and their families trying to navigate them with dignity, and frames all of its social critique in a similarly holistic manner.
Ethical complexity is a primary vector in understanding how Tobe depicts the people in her work. For a series concerned with strictly realistic if dramatized tonality, it's difficult to apply a "villain" to any of the ongoing story arcs. None can rise to take the mantle by themselves as there are always moments of mutual connection and rapport between even the more obstinate persons Sachiko encounters, and rarely if ever are those attitudes fostered by active malice. It's institutionalized apathy and neglect she has to overcome, or the social barriers whether professional, gendered or generational. The range of teaching methods applied by those responsible for Hikaru's schooling often serve as the foremost obstacle for Sachiko to navigate and mediate around, walking on eggshells around ossified practices and beaten down by life professionals. This could easily take the pattern of Sachiko educating all in her way and in one altruistic, beatific swoop enlightening people for the better, but in practice it's not how it usually works out, as the lessons she tries to impart on others are sometimes applied only partly, downright ignored, or eventually reverted in time. There are no easily artificial redemption arcs for anyone in the story, as pre-existing habits and flaws still turn up even as the emotional pivot point in the story is reached for many of the characters. One of the most present and multifaceted is Sachiko's mother-in-law Takako, whose treatment of Sachiko and her family oscillates according to her own biases and ingrained insecurities, ranging from a goodly grandmother to a vindictive and petty matriarch. All of this is done with not to establish her as the evil antagonist to be dressed down for good, but as someone the Azuma family increasingly have to interact and live with, painting a complex picture of family dynamics that differ based on the individual and the rigid mindset of one coached in suffocating tradition and inability to compromise. Takako would be a cackling villain in other contexts but here she is a complex, flawed individual granted her own interiority and perspective on matters that she is often unambiguously wrong about but still afforded the opportunity to be so and be framed no less sympathetic for it. It is through her that some uncommon attributes shading the series manifest, like the willingness to portray old people as possessing personal lives of their own and romantic arcs that play out as integrally as any other narrative texture utilized.
Reading
With the Light is often very emotional just for where the comic's priorities lie and how easily they can be applied to the individual, but it might have a claim for the most gutwrenching manga there is just for its publishing context. The series ran until 2010, with its final volume coming out in the middle of that year, but that release was posthumous for Tobe. She passed away in January after battling cancer for most of the previous year, with the series going on hiatus during that time. The last volume, especially in the English double-sized format, is uncommonly slight, for it comprises all of the remaining material that Tobe created during this period, compiled after her death. The final few chapters are presented only as uninked manuscripts and storyboards on the page--what they are are effectively the creative testament of a creator who continued creating even on her deathbed. As anyone who follows serialized media, there will always be instances where a creator's passing brings sorrow for the loss of the individual and the complicated reconciling of that with the realization that the story one enjoyed has also now been cut short into perpetuity. Many people in this medium recently had to take stock of that with Kentaro Miura's passing and the enormous legacy and unfinished story he left behind.
With the Light will never be recipient to tributary mourning on that scale, and it doesn't have to be; it's not a competition. In this respect and this respect only it is my
Berserk, the work that will leave a space that can't ever be truly filled, and that I'll always feel a gnawing sense of unfulfillment about; Hikaru will always remain a junior high student as his sister Kanon will remain in elementary school, and I'll never know what resolution Tobe had in mind for any of the Azumas. Maybe that's okay though, as the goals of the series narratively and in the professed wishes of its cast were never anything monumental, and so can reflect how to feel about it today: just living life each day and challenge at a time, holding on to hope in the face of hardships.
~~~
Obviously, I recommend reading With the Light, but I don't know how easy it is to access these days. Look for reprints if ones exist, and maybe it's been digitally released on Comixology or the like. I would be delighted if more people got to experience it.